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Developing A "Toolkit" To Measure Implementation Of Concurrent Palliative Care In Rural Community Cancer Centers

Zubkoff, Lisa; Dionne-Odom, J. Nicholas; Pisu, Maria; Babu, Dilip; Akyar, Imatullah; Smith, Tasha; Mancarella, Gisella A.; Gansauer, Lucy; Sullivan, Margaret Murray; Swetz, Keith M.; Azuero, Andres; Bakitas, Marie A. (Cambridge Univ Press, 2018)

Objective: Despite national guidelines recommending early concurrent palliative care for individuals newly diagnosed with metastatic cancer, few community cancer centers, especially those in underserved rural areas do so. ...

Family Caregiving For Persons With Heart Failure At The Intersection Of Heart Failure And Palliative Care: A State-Of-The-Science Review

Dionne-Odom, J. Nicholas; Hooker, Stephanie A.; Bekelman, David; Ejem, Deborah; McGhan, Gwen; Kitko, Lisa; Stromberg, Anna; Wells, Rachel; Astin, Meka; Metin, Zehra Gok; Mancarella, Gisella; Pamboukian, Salpy V.; Evangelista, Lorraine; Buck, Harleah G.; Bakitas, Marie A. (Springer, 2017)

Many of the 23 million individuals with heart failure (HF) worldwide receive daily, unpaid support from a family member or friend. Although HF and palliative care practice guidelines stipulate that support be provided to ...

Engaging Patients And Families To Create A Feasible Clinical Trial Integrating Palliative And Heart Failure Care: Results Of The Enable Chf-Pc Pilot Clinical Trial

Bakitas, Marie; Dionne-Odom, J. Nicholas; Pamboukian, Salpy V.; Tallaj, Jose; Kvale, Elizabeth; Swetz, Keith M.; Frost, Jennifer; Wells, Rachel; Azuero, Andres; Keebler, Konda; Akyar, Imatullah; Ejem, Deborah; Steinhauser, Karen; Smith, Tasha; Durant, Raegan; Kono, Alan T. (2017)

Background Early palliative care (EPC) is recommended but rarely integrated with advanced heart failure (HF) care. We engaged patients and family caregivers to study the feasibility and site differences in a two-site EPC ...

Associations Between Advanced Cancer Patients' Survival and Family Caregiver Presence and Burden

Dionne-Odom, J. Nicholas; Hull, Jay G.; Martin, Michelle Y.; Lyons, Kathleen Doyle; Prescott, Anna T.; Tosteson, Tor; Li, Zhongze; Akyar, Imatullah; Raju, Dheeraj; Bakitas, Marie A. (Wiley, 2016)

We conducted a randomized controlled trial (RCT) of an early palliative care intervention (ENABLE: Educate, Nurture, Advise, Before Life Ends) for persons with advanced cancer and their family caregivers. Not all patient ...